Maksim’s Journey Continues: Specialist Care at GOSH
In 2023, we shared Maksim’s story after he received a kidney transplant at Great Ormond Street Hospital (GOSH), donated by his father. Born with a rare genetic kidney condition, Maksim had already been through a significant journey with his family.
In July 2025, Maksim returned to GOSH from Belgrade, Serbia, for specialist treatment for a rare condition known as post-transplant lymphoproliferative disorder (PTLD). His care brought together GOSH’s Haematology and Renal Transplant teams, who worked closely to treat his condition while carefully monitoring his health and his transplanted kidney.
A Complex Diagnosis
Maksim was initially treated at his local hospital in Belgrade after developing abdominal pain and swelling. Investigations revealed intussusception, a condition in which one part of the intestine slides into another, alongside a lymphoid mass and rising levels of Epstein-Barr virus (EBV).
Following his transfer to GOSH, a biopsy confirmed EBV-driven PTLD, Burkitt type.
Treating PTLD requires careful consideration of each child’s individual circumstances. As Maksim had previously received a kidney transplant and needed medication to protect it, his team had to balance effective treatment for his new condition with the need to safeguard his kidney function.
Specialist Teams Working Together
Maksim began chemotherapy under the GOSH Haematology team, with close involvement from the Renal Transplant team. His response to treatment and potential side effects were carefully monitored throughout, with regular assessments to help guide his care.
Sarah, Clinical Nurse Specialist at GOSH, first met him and his family on Butterfly Ward. His care highlighted the importance of collaboration between specialist teams when caring for children with complex medical needs.
“Managing Maksim’s condition required close collaboration between our specialist teams. It was important to tailor his care to his individual needs, monitor his response to treatment carefully and protect his transplanted kidney.” -Sarah Griffin, Clinical Nurse Specialist
Maksim remained an inpatient at GOSH for approximately seven months while receiving treatment and care. His management was coordinated with his medical team in Serbia, helping to prepare for his return home and support continuity of care.
A Positive Milestone
After completing treatment, Maksim returned to Serbia with a detailed plan from his GOSH team for ongoing surveillance, including guidance on when to seek medical advice.
Six months after completing treatment, Maksim returned to GOSH for a follow-up appointment. The team was delighted to see that Maksim looked extremely well and remained in remission — an excellent outcome following his treatment. He also marked this important milestone by ringing the end-of-treatment bell at GOSH.
Maksim will continue to be monitored by his Haematology and Renal Transplant teams, alongside his medical team in Serbia. From his kidney transplant to his more recent treatment, Maksim’s journey highlights the importance of specialist expertise, personalised care and close collaboration in supporting children with complex medical needs.
